Monday, August 17, 2009

I'm Registered and Walking for a Cure!

So in lieu of yet another canned page, how about we get a little personal, eh?

For those of you who don't know any diabetics other than me, who don't know what it's like to live with diabetes everyday, let me give you a small (long winded) insight.

Imagine you're standing on a three foot long wood plank.

Now imagine your plank suddenly got set on a basketball and to make it fun, you have to somehow keep the ball rolling forward. (Life doesn't end when you're diagnosed)

If you fall off, you're gonna hurt like heck. Until you get back up, your body will continue to take lasting damage, possibly leading to drastic, irreversible complications. You're not allowed to take a break and very few other people are able to actually help. But they only can do so much.

Imagine now, you're told, "Now do this for the rest of your life. Don't mess up, don't trip, and never rest."

That is life with Diabetes. It's a constant balancing act, "Constant Vigilance" as Mad-Eye Moody said. Working your job, hanging out with your friends, going to school, getting sick all the while.

Watch your blood sugars, Make sure you get enough exercise, but not too much, Make sure you eat right, but not too much, Don't forget to get your insulin dose perfect too, but never too much.

It's always on your mind. Once diagnosed, there is nothing in your life that Diabetes doesn't touch, affect and change.

Just the thought of being able to walk on even ground again... This is what makes everyone, who has diabetes or has a loved one with it, fight for a cure, constantly hope for an end and the opportunity to live without worrying about how to just survive.

If you have the means to help by donating money, it's greatly appreciated. If not, take the time to do a little research and learn more about Type 1 Diabetes. A little knowledge goes a long way.

Thanks and Appreciation to all,

Jess and Zane Kuddes

Here's where you can go donate:

Tuesday, August 11, 2009

Strike One!

So first of all, Dr. New has lost favor. As anyone who has talked to me recently has been told repeatedly.

One of the next things I've been working towards getting is a CGM. (A CGM is a Continuous Glucose Meter. This, Dexcom, is the one I've been working on getting. It basically checks your blood sugar every five minutes and actively charts your bloodsugars so you can see if your blood sugars are rising, dropping or actually behaving for once.)

I've had my eye on one since I learned about them. I'm finally in a situation where we can afford one. We both have full time jobs, we both have insurance. I'm dual insured and I thought I had a proactive doctor who was willing to bat for me.

In our last appointment, he not only fouled out, he downright pissed me and Zane off.

If he'd pissed me off by just saying I need to work harder, I would've taken that. But instead he blew me off.

We talked about how well the new basal rates are working. I showed him the filled out logbook that he requested. I mentioned that I've been having lows just before dinner and he wanted to radically change my rates all over again. He wanted me to change every single rate. Not just the ones around dinner. I tried to explain that I disagree but he ignored me and continued changing my basals. So I moved on, figuring I'd give it a run for it's money and see how it goes.

As all doctors do, he asked if I have any questions before we're done with the appointment. I told him of my plans to get a CGM. All I need is him to help me finish convincing insurance that having one would increase my health. Providing me with a longer more livable life.

Instantly he started balking the idea. By the end of the conversation Zane and I were seething. He essentially told me that I am not important enough for him to back me up. He doesn't want to tarnish his reputation. Rather saving his reputation for more important patients, such as one who is a surgical doctor or one who has gone repeatedly to the ER. Telling me that my line of work isn't important enough, nor am I close enough to dying for him to think me important.

I'll never understand reactionary medical practitioners. You'd think, provided the opportunity, you'd jump on the chance to take preventitive measures. Tighter BG control from the beginning, rather than waiting till the disease has begun to take it's toll on me.

He said he was afraid of being seen as an over prescribing doctor. I'm trying to understand where he gets off on saying that. I'd bet a good amount of money that he has a challenge just to get most of his patients to even test more than once a day, let alone take a proactive role in their care.

I want to prolong my life, I want a better quality of life. I want to have low blood sugars stop sneaking up on me. What would happen if I'm driving down the road and I don't feel the low until I've already caused an accident? What if I'm slicing meat and lose a finger?

Explain to me why I'm not important enough? I thought doctors were doctors to help people, not build their reputation.

I've got everyone working for me but a man who is supposed to be a central node to my health care.